Diabetes Misdiagnoses
Friends of ours just discovered their 6 year old son has Juvenile Diabetes. The look of pain on Mom and Dad’s face is transparent as Jordon takes his shot, but being the little trooper he is, Jordon says “Don’t worry, I’ll get used to it”?
The day before entering the hospital, Jordon was urinating every 30 minutes which clued the parents in that something was not right. His blood sugar level was at 497 and he was immediately referred to another hospital more equipped to deal with this form of Diabetes.
What is odd is that Jordon went in for a test a few months before and everything checked out fine. Now, he’s diagnosed with Juvenile Diabetes. More odd was that the doctor specializing in this field asked if Jordon had any recent significant events, such as surgery.
Jordon did in fact have surgery to have tubes placed in his ears a month or so before. Upon hearing this, the doctor seemed concerned and said “He Did?” – it’s not much, but the expression on the doctor’s face and the way the question was asked hinted that the doctor knew something. Nothing else was mentioned and the doctor continued the consultation.
Perhaps the doctor knew something or has seen enough to make a conclusion, but in the medical industry, and for legal purposes, you just don’t mention a hypothesis without factual information, so the thought stayed private.
I’ve seen misdiagnoses many times; let me quickly tell you about two serious errors. I had a lump on my tongue which doctors lopped off, tested and diagnosed with cancer. A throat specialist was smart enough to suspect that I had Mono and retested (at 38, it’s rare and can mimic cancer); Mono it was, no cancer and the lump was simply a swollen glad brought on by Mono. Without the retest, I can only imagine what would have happened!
While living in Florida (we are originally from and now living in Michigan) my wife was diagnosed with a hyperthyroid (an overactive thyroid gland that causes excessive sweating, tremors, heart problems, etc.) The doctors wanted to use radioactive Iodine to kill part of the thyroid to bring it back down to normal levels.
Luckily, we never had the procedure and moved back to Michigan shortly after. It was a misdiagnosis and within two months, her thyroid went back to normal! Turns out it was the climate, but the doctors never suggested this (or perhaps didn’t know about it). Had she killed part of the thyroid, she would now have the opposite problem, a hypothyroid!
Cure for Juvenile Diabetes
If the doctor says your child needs attention, it’s nothing to ignore and they can provide immediate treatment to bring levels to what they should be.
The point of this page is not claim that doctors are misdiagnosing diabetes, but rather to bring to light patterns that may be an underlying cause to some cases of Juvenile Diabetes; patterns that the doctor may not be aware of or can’t legally say. If we can find a pattern, we can narrow the cause and hopefully, find a less invasive (or natural) treatment.
Perhaps when the body is traumatized, such as surgery for ear tubes, it somehow causes something in the body to produce more sugar. Doctors are not even sure what causes diabetes, but perhaps the information found here may help Jordon or others in some way. As it stands, Jordon’s life has changed, forever.
How you can Help
Perhaps you, your child or someone you know has also had surgery or trauma of some type before being diagnosed with Juvenile or Type 1 Diabetes? If you have any information whatsoever that may help, please leave a comment. You do not have to use your real name.
Disclaimer: I am in no way suggesting that you not seek medical advice or avoid treatment but rather looking for ideas, suggestions and creative thought.
Here are some ideas that visitors have suggested:
One visitor said they were shown a heat map for Diabetes that displayed how many incidents occur in parts of the state (something to do with GIS and incidents of registered Diabetes). The area their child was in was flagged as a hot spot. If anyone comes across this map, please let us know. [diabetes registry, diabetes heat map, diabetes hotspots, etc].
Vaccines – speculation that these HOT areas may have something to do with vaccines.
Pop – speculation that Aspartame is somehow involved can be found on defeatdiabetes.org, which can now be found here:
Defeat Diabetes: Aspartame – The Silent Killer (archive.org)
A quote from this page states:
I assure you that MONSANTO, the creator of Aspartame, knows exactly how deadly their product is. They fund the American Diabetes Association, the American Dietetic Association, Congress, and the Conference of the American College of Physicians. They have the contacts and the power to keep their product on the market. Public health means nothing to these people, it’s all about making money.
Vomit – was your child recently sick and vomiting? Ketones used to determine T1D and can show in your urine after a frequent vomiting which may register as diabetes.
Check thyroid, vitamin D, folic acid and B12.
There are a number of comments related to ear tubes and T1D (Type 1 Diabetes), see below.
My 11-year son was diagnosed with Type-I diabetes 2 days ago. He has been extremely healthy and much involved in sports, music, and academics a kid his age would. Very healthy all his short life.
He had a flu shot delivered at the neighborhood pharmacy on June 21, 2012
We took him to the hospital on July 24, 2012 for what he described extreme weakness. He had been displaying the symptoms of diabetes the last weeks, I would remark that coincidentally after the flu shot was administered.
I am feeling tremendous guilt and I, as the parent was the one who suggested and took the boy to the pharmacy, am distraught over the prospect that I myself may have been the cause of his now life-long disease.
Any opinions and comments are greatly appreciated.
A Concerned Dad
Our son was diagnosed with type 1 diabetes Dec. 30, 2009. He received the H1N1 flu mist vaccine Nov. 1, 2009. I have wondered about this as a trigger. Others on this site have told similar stories.
My question now, after reading all the PubMed studies related to vaccines and type 1, do I vaccinate my daughter? No scientific evidence confirms a reason not to, but there is still plenty of room to question and the burden of proof is so heavy in science. I think there is a lot there left to be determined.
OH! And not that I would wish it upon anyone. But I read in the newspaper that the Dr. who had prescribed the anti-biotic was ran over by a truck while riding his bike 2 weeks later. Ironic, huh? And now I have this life changing disease.
I was diagnosed with type 1 diabetes at age 27. It came on all of the sudden and I swear I lost 30 lbs in 2 weeks, was going to bathroom, TIRED, THIRSTY, and had dry, blurry eyes. It is an auto-immune disease and in my case (although hereditary) it was the result of an anti-biotic a physician had given me for a sore throat. Which could very well be the same case with your son’s ear infection/tubes.
IF he was on an anti-biotic. I can’t remember which one it was. Cephalexen 500MG strong! But what happened is the anti-biotic did a reverse and attacked my beta cells inside my pancreas. Now it doesn’t produce any insulin and I’ve gone from medicine, to shots, to now an insulin pump and CGM. It could be the Hmmm…hush hush from Dr.
My daughter was diagnosed with diabetes last month. It was strange because she was not sick and had been feeling normal except for pressure in her ears and she was drinking a lot of water. I took her to the doctor thinking maybe she had an ear infection. He said her ears were fine but she had sugar in her urine and we were sent to the emergency room at the children’s hospital.
The thing that bothers me is that no test were done other than measuring her blood glucose. When I asked the doctors if it could possibly be something besides diabetes he said yes but they are rare and he refused to tell me what they were. My daughter has not taken a single shot of insulin for 9 days now but continues to test up to 15 times a day and her blood glucose readings have stayed within normal range. Is it the honeymoon phase or was she misdiagnosed? I really don’t get it.
My son was diagnosed with type 1 when he was 6. He had 2 sets of tubes in his ears prior to his dx, as well as allergy shots and lots of benedryl. He also got mono and had a swollen spleen before his dx. He is now 19 and his blood sugars suck. I don’t know what to do with him. He has been on a pump since he was 7, but now that he is older he could care less about checking his blood and has told me he would rather be dead than deal with diabetes. I don’t know what caused him to get the diabetes since it does not run in either side of our family.
My five-year-old son was diagnosed with Type 1 on November 29, 2011. We were told that we caught it extremely fast and according to tests, he had only been experiencing problems for about a month. He received a flu shot on October 31, 2011. This was also Halloween. I’m convinced that the nasal mist vaccine that contained the live virus and his pancreas bringing out all of the healthy Beta cells in force to take care of the sugary candy was the perfect storm. If I had only decided against the flu shot, we may not be dealing with this nightmare.
There are studies that have shown connections between traumatic life events and the onset of type 1 diabetes. Our children were removed from our custody in 2005 because we were homeless. They were removed by police officers and taken to the county “orphanage”.
We got housing but it was still another month before our children were returned. A few days before our middle son who was then three was diagnosed with type 1 diabetes, he told his father and I during a visit that he promised he would be good if we would just let him come home. It was heartbreaking and I truly believe that the trauma of being taken away from his loving but poor parents is what brought on our son’s type 1 diabetes.
Thank you so much for letting others share their experiences and situations. Sometimes it’s not easy to believe that diseases can be brought on or caused by the things that they are, but education and understanding is always wonderful.
Reading some of the comments on here really made me think about my son’s Type 1 diabetes. He was diagnose last January (2-3 months after having the flu jab. It was a total shock when they diagnosed him but he did have all the symptoms (losing weight, frequent urination, thirst and lethargy).
The hospital and Drs have been fantastic but a year on he is still on really low doses of insulin (breakfast 1.5, lunch 1, dinner 1.5 and slow release 5). We are told he is still Honeymooning and eventually he’ll have to up his intake. I have a nagging doubt in my mind about misdiagnosis or it being caused by the flu jab. How can you find out if he can do without his insulin without harming him??
I was diagnosed with type 1 diabetes at the age of 58 after being rushed to the hospital with ketoacidosis and an AIC of 15.5. I also had a sepsis infection that the hospital reports states came from a bladder infection.
Ironically, the month before I went into the hospital I had surgery for a perianal abscess. In the hospital I was put on insulin and have been under the care of an endorinologist since then. However, I recently found out that I am type 2, not type 1, which my doctor confirmed. I think I should have been weened off of insulin after the infection cleared which never happened. I am now looking for a second opinion. Also, I am reducing the amount of insulin I take and haven’t seen a great difference in my readings.
This has totally changed my life. I was working and had to leave because it was so difficult keeping up with the routine. I wish I knew what damage could be caused by injecting insulin when you don’t need it?
I am 16 years old. I diagnosed with juvenile diabetes almost three months. I was at the hospital for nine days and i was taking insulin three or four times a day. I had an easy surgery the second day in hospital. When I went back home I was taking insulin for just two weeks. Then we realized, I didn’t need insulin anymore. Doctor said that is honeymoon period. Now, I have normal sugar-blood levels without insulin more than two months.
Can doctors made misdiagnosis for diabetes?
My 10 year old son was diagnosed with type 1 diabetes in March of this year. I was heart broken for Him. They told us that He would never produce insulin again period accept it. We started him on insulin and completely changed His diet. After a month He needed less and less insulin, doctors then said that would stop and He would never produce more that 30% of what He needs. 6 weeks in He did not need any insulin, doctors then said its a honeymoon stage. I think they are wrong about Him having it in the first place. When I looked back at His carb intake He was drinking 3 to 4 glasses of apple juice 3 to 4 glasses of V* fusion a day. Thinking it was a healthy choice. Looking at the sugars and carbs in all that was over 400 carbs before He at any meals. My thoughts are He was overloaded and shut down. Now that His diet has changed He is recovering. I truly think the doctors got it wrong. Anyone else experience this please email me at steveloans@msn.com
I was diagnosed with type 1 diabetes 10 years ago, when I was 24. Prior to that I’ve had issues with reoccurring ear infections, and multiple sets of tubes. I want to say I’ve had about 3-4 sets put in.
I was given multiple vaccinations in preparation of studying in Seoul, Korea, a year prior to me developing type 1 diabetes.
I have always speculated I developed this horrible disease as a result of medication I took (antibiotics for my ear infections or vaccination(s) I was given). But this theory of tubes in the ear makes me even more interested to find out just how many T1D have had tubes when they were younger.